Patient Registry for Congenital
Lipoid Adrenal Hyperplasia

Japan Agency for Medical Research and Development (AMED) Practical Research Project for Rare/Intractable Diseases

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Establishment
of a patient registry

and real-world evidence

to develop clinical practice guidelines for congenital lipoid adrenal hyperplasia

Illustration of doctors Illustration of a patient and his family Illustration of medical staff

Recent Updates

We held a public lecture on congenital lipoid adrenal hyperplasia. Thank you for participating.
We will hold a public lecture on congenital lipoid adrenal hyperplasia on Saturday, November 29. Please refer to the brochure (in Japanese) for details.
Due to the principal investigator's transfer, the research office has been relocated from Keio University to Tokyo Metropolitan Children's Medical Center.
Website launched.

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